Abanti Deka had no idea when she married her husband that taking his name would jeopardise her Indian citizenship.
That was before authorities in the northeast Indian state of Assam, where she has lived all her life, launched a vast and highly contentious exercise to register all its citizens as part of a campaign against illegal immigration.
When the register was published at the end of August, the names of nearly 2 million of the state's about 33 million people were missing, plunging them into a bureaucratic nightmare that human rights experts fear could render some stateless.
Abanti was one of the unlucky ones.
"The notice came suddenly," she told the Thomson Reuters Foundation at her lawyer's office.
"I don't understand. I was born here, I have voted here before, but suddenly none of that matters any more."
Resentment against illegal immigrants has simmered for years in Assam, one of India's poorest states, with residents blaming outsiders for taking their jobs and land.
To be included on the register, residents had to produce documents proving their families lived in India before March 24, 1971, when hundreds of thousands of people began fleeing conflict across the border in what is now Bangladesh.
Lawyers and campaigners dealing with such cases say they present particular challenges for women.
About one in three women in Assam is illiterate - a higher proportion than for men - and many marry young, moving away from home and losing access to any documents that might prove their origins.
They also take their husbands' names, a move that has complicated things further for many married women in a region where family names are markers of ethnic and religious affiliation.
"The women have had to pay a higher price," said Tanya Laskar, a lawyer working on such cases.
"They have struggled the hardest to get relevant documents and many failed because they were child brides or the family did not put their names on a land document because women are not entitled to property in many homes."
PRESSURE
India is expected to face pressure at a major intergovernmental meeting in Geneva on Monday to assess progress in a global decade-long campaign aimed at eradicating statelessness by 2024.
On Wednesday, the U.N. High Commissioner for Refugees Filippo Grandi expressed concerns that the Assam exercise could result in some people being made stateless.
There are an estimated 10-15 million stateless people worldwide who are not recognised as nationals of any country and are deprived of basic rights most people take for granted such as education and healthcare.
Those excluded from India's register will have 120 days to prove their citizenship at hundreds of regional quasi-judicial bodies known as foreigners' tribunals. If that goes against them, they can appeal all the way up to India's Supreme Court.
'LONELY BATTLES'
From land deeds to school leaving certificates, voter lists and birth certificates, residents of Assam have had to spend thousands of rupees to access their documents from government offices.
Laskar, who runs awareness campaigns on the process, said poorer families often spent their limited resources on the men.
"In poor families, a woman's right to justice comes at the end," she said. "We have had women fainting in our awareness meetings because they are so worried of what lies ahead. Many know that they will have to fight lonely battles."
Education is another factor, said Digambar Narzary, head of the Nedan Foundation, a human rights charity that works in a remote autonomous region inhabited mostly by tribal people.
"In many parts of the state, access to education for girls has been a challenge," she said.
"Since they haven't been to school or dropped out early, they do not have essential school leaving documents that establish one's age and other details."
State authorities have not provided a breakdown of men and women omitted from the register. But many married women like Abanti say they have been left off even though their siblings and parents were included.
Among them is Aladi Mondol, 42, the only member of the family she was born into whose name is not on the citizens' register.
Mondol lost key documents in flooding, common in Assam, and said she did not realise how important they would become.
"I was trying to salvage so many things from the house as the river crept in," she said.
"I cried when I found out because my brothers and parents are on the list. I am a little scared."
SURNAMES MATTER
Debasmita Ghosh, the lawyer representing Abanti at a foreigners' tribunal in the state capital Guwahati, said her client had not known that her married name would cause problems.
"They are Assamese and she was born here. She didn't realise that the surname mattered," Ghosh told the tribunal at a recent hearing to which the Thomson Reuters Foundation gained rare access.
"In fact, she never mentioned her father's name to us either, we found it by chance in an old document she gave us," said Ghosh, who works with the Human Rights Law Network, a collective that provides legal aid.
That proved Abanti, who does not know her exact age but is in her 40s, was called Deka before she married Adhir Hajong and took his name, which many associate with Bangladesh.
Abanti said her ordeal had made her feel almost invisible, but knew she had to see it through for her children's sake.
"If I am declared a foreigner, it will impact my children. They will not get jobs or benefits from the state," she said.
"I am not a criminal, but if the tribunal is not convinced that I was born here then I might be in a detention camp and that will be the end of the road for my children as well."
UK life sciences sector contributed £17.6bn GVA in 2021 and supports 126,000 high-skilled jobs.
Inward life sciences FDI fell by 58 per cent from £1,897m in 2021 to £795m in 2023.
Experts warn NHS underinvestment and NICE pricing rules are deterring innovation and patient access.
Investment gap
Britain is seeking to attract new pharmaceutical investment as part of its plan to strengthen the life sciences sector, Chancellor Rachel Reeves said during meetings in Washington this week. “We do need to make sure that we are an attractive place for pharmaceuticals, and that includes on pricing, but in return for that, we want to see more investment flow to Britain,” Reeves told reporters.
Recent ABPI report, ‘Creating the conditions for investment and growth’, The UK’s pharmaceutical industry is integral to both the country’s health and growth missions, contributing £17.6 billion in direct gross value added (GVA) annually and supporting 126,000 high-skilled jobs across the nation. It also invests more in research and development (R&D) than any other sector. Yet inward life sciences foreign direct investment (FDI) fell by 58per cent, from £1,897 million in 2021 to £795 million in 2023, while pharmaceutical R&D investment in the UK lagged behind global growth trends, costing an estimated £1.3 billion in lost investment in 2023 alone.
Richard Torbett, ABPI Chief Executive, noted “The UK can lead globally in medicines and vaccines, unlocking billions in R&D investment and improving patient access but only if barriers are removed and innovation rewarded.”
The UK invests just 9% of healthcare spending in medicines, compared with 17% in Spain, and only 37% of new medicines are made fully available for their licensed indications, compared to 90% in Germany.
Expert reviews
Shailesh Solanki, executive editor of Pharmacy Business, pointed that “The government’s own review shows the sector is underfunded by about £2 billion per year. To make transformation a reality, this gap must be closed with clear plans for investment in people, premises and technology.”
The National Institute for Health and Care Excellence (NICE) cost-effectiveness threshold £20,000 to £30,000 per Quality-Adjusted Life Year (QALY) — has remained unchanged for over two decades, delaying or deterring new medicine launches. Raising it is viewed as vital to attracting foreign investment, expanding patient access, and maintaining the UK’s global standing in life sciences.
Guy Oliver, General Manager for Bristol Myers Squibb UK and Ireland, noted that " the current VPAG rate is leaving UK patients behind other countries, forcing cuts to NHS partnerships, clinical trials, and workforce despite government growth ambitions".
Reeves’ push for reform, supported by the ABPI’s Competitiveness Framework, underlines Britain’s intent to stay a leading hub for pharmaceutical innovation while ensuring NHS patients will gain faster access to new treatments.
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